tag:blogger.com,1999:blog-8042812243722741252.post1942069470584667640..comments2023-05-12T02:58:07.385-05:00Comments on Cheshire Farm: A Deflating HeartJenhttp://www.blogger.com/profile/11178012877379246147noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8042812243722741252.post-22805643736423294552014-10-26T21:42:33.069-05:002014-10-26T21:42:33.069-05:00Oh, damn! I just read this tonight...I so wish I ...Oh, damn! I just read this tonight...I so wish I had read it BEFORE our visit today.....I am curious what people felt that you could have done differently to make the success rate increase.....You pushed this, with help, in many different ways......Carlahttps://www.blogger.com/profile/17086255290775238258noreply@blogger.comtag:blogger.com,1999:blog-8042812243722741252.post-60084947113061007382014-10-26T08:10:47.128-05:002014-10-26T08:10:47.128-05:00I completely hear you. My husband and I have spoke...I completely hear you. My husband and I have spoken of both of these two groups (and saw a few of the first ones while their child was still in treatment!). We are coming to terms with this as a defeat in our play book, but overall our winning record outweighs this one loss. Thanks so much for your wise words. Jenhttps://www.blogger.com/profile/11178012877379246147noreply@blogger.comtag:blogger.com,1999:blog-8042812243722741252.post-6508624362081332932014-10-26T01:50:04.596-05:002014-10-26T01:50:04.596-05:00I am sorry for your frustration, perhaps even des...I am sorry for your frustration, perhaps even despair. I am going to make some statements, meant only as food for thought NOT criticism.<br />My experience as an oncology nurse taught me that many people, when the illness is resolved are done. They never want to talk about it, meet any staff involved - acknowledge that this event happened in their life. <br />OR They jump in frenetically to a 'new' life, one that sublimates the journey they just completed. They change their causes. <br />And the causes... there are so many - Bullying, autism, orphan diseases birth defects, cat sanctuary, Boston Terrier rescue, German Shepherd rescue, St. Jude's Hospital, St. Baldricks Organization. <br /><br />This is not a personal failure on your part. Disappointing? Yes. But you did all you could and the loss is not yours. <br /><br />MomToohttps://www.blogger.com/profile/16236667105036567701noreply@blogger.comtag:blogger.com,1999:blog-8042812243722741252.post-56194628324595583952014-10-25T20:55:55.661-05:002014-10-25T20:55:55.661-05:00Keep up the fight. There a many of us that are sti...Keep up the fight. There a many of us that are still rooting for you. I myself have shared the page on Facebook. I have even contemplated getting the Childhood Cancer License Plate. When I was looking into information on the state's site, I discovered that there was a Autism Awareness License Plate. Since this one will affect our family the rest of our lives, I am leaning towards it. <br /><br />Both are wonderful causes. Unfortunately autism is one of those diagnoses that people do not understand. There is so much misinformation out there. I have researched and been vocal about autism. I have gotten shunned by people or told that I don't discipline my child enough. It reminds me of when someone has poison ivy, and people steer away because they mistakenly think that they can get poison ivy from someone else. I watch other children roll their eyes at my child and excluded him. It is painful to watch and no medicine can ever fix that. I am thankful for my little superhero even if everyday is a challenge. One day I will learn how to speak and interrupt the autism manual for dummies, until then it is trial and error. <br /><br />I cannot even imagine the unseen battle that your family went through. But I do know that: You ARE amazing and tell your stories with no fear. You ARE a mamma bear and you ARE standing up for your cubs. You ARE an inspiration! I hope that I can be as brave as you when it comes to standing up for my children.<br /><br />I am proud to support Team Zoe! I am so happy that Zoe will get to have a normal life. I am hoping with all my might that the Childhood Cancer License Plate become a reality! Hugs to you my friend!Jennyhttps://www.blogger.com/profile/14054528354069071422noreply@blogger.com